Risks and Benefits: A Citizens’ Jury
July 9, 2010
From September 2010, WIHSC will be working in partnership with Genetics Alliance UK, to examine how patients and their families affected by genetic conditions perceive the balance between the risks and the benefits of new biomedical therapies.
Based on a Citizens’ Jury model, the project will involve up to 16 patients and family members in deliberative dialogue on this complex issue. The research will empower patients and families and validate the inclusion of their persepective into risk and benefit analysis, contributing to the debate about the management of health interventions, the planning of clinical trials and the practices of regulators, pharmaceutical companies and clinicians. The project will be overseen by a Steering Group made up of experts in the field and patients.
Tagged: citizens' jury genetics patient
